I'm Aware That I'm Rare: the phaware® podcast
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I'm Aware That I'm Rare: the phaware® podcast
I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from me...
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Terri Keplinger - phaware® interview 570
She'd Never Been Sick - Until a Rare Disease Hit Like a Brick Wall
Terri Keplinger went from healthy and unstoppable to fighting for breath afte...
Episode 570 - Terrie Keplinger
She'd Never Been Sick - Until a Rare Disease Hit Like a Brick Wall
Terri Keplinger went from healthy and unstoppable to fighting for breath afte...
Rey Adam Rodriguez - phaware® interview 569
From Newlywed to Newly Diagnosed
Six months after saying "I do," Rey Adam Rodriguez was told he had pulmonary arterial hypertension. Rey...
Episode 569 - Rey Adam Rodriguez
From Newlywed to Newly Diagnosed
Six months after saying "I do," Rey Adam Rodriguez was told he had pulmonary arterial hypertension. Rey...
Sherry Rouse - phaware® interview 568
She Was Prepared for Breast Cancer Not for a Rare, Incurable Disease
At 30, Sherry Rouse went in for a breast cancer screening. What doc...
Episode 568 - Sherry Rouse
She Was Prepared for Breast Cancer Not for a Rare, Incurable Disease
At 30, Sherry Rouse went in for a breast cancer screening. What do...
Nicholas Kolaitis, MD - phaware® interview 567
The Insurance Plan You Never Knew You Needed
What does a lung transplant have in common with car insurance? More than you'd think. Dr. N...
Episode 567 - Dr. Nicholas Kolaitis
The Insurance Plan You Never Knew You Needed
What does a lung transplant have in common with car insurance? More than you'd think. Dr. N...
Lala Juarez - phaware® interview 566
The Most Dangerous Phrase in Rare Disease: "You Look Fine."
My name is Lala Juarez. I am a support group leader for Northern Utah. I'm also a pa...
Episode 566 - Lala Juarez
The Most Dangerous Phrase in Rare Disease: "You Look Fine."
Diagnosed with idiopathic pulmonary arterial hypertension in her early 20s after yea...
Angela Brown - phaware® interview 565
The Daily Discipline of PH: Living by the Liter and Label
Most people don't count every sip of water or every grain of salt. Angela Brow...
Episode 565 - Angela Brown
The Daily Discipline of PH: Living by the Liter and Label
Most people don't count every sip of water or every grain of salt. Angela Brow...
Neal McDermott and Steve Mathai, MD - phaware® interview 564
Two Rare Diagnoses, One Powerful Partnership
Scleroderma and PAH: Patient, Neal McDermott and Dr. Steve Mathai unpack how the intersecti...
Episode 564 - Neal McDermott and Steve Mathai, MD
Two Rare Diagnoses, One Powerful Partnership
Scleroderma and PAH: Patient, Neal McDermott and Dr. Steve Mathai unpack how the intersect...
Khushboo Goel, MD phaware® interview 563
The Hidden Daily Battles of Pulmonary Hypertension Patients
Behind the clinical charts and heart catheterizations lies a world of emotio...
Episode 563 - Khushboo Goel, MD
The Hidden Daily Battles of Pulmonary Hypertension Patients
Behind the clinical charts and heart catheterizations lies a world of emotio...
Ripla Arora, PhD - phaware® interview 562
Why the Clues to Pulmonary Hypertension Start Before Birth
When Ripla Arora first studied TBX4 as a young PhD student, no one imagined this gene...
Episode 562 - Ripla Arora, PhD
Why the Clues to Pulmonary Hypertension Start Before Birth
When Ripla Arora first studied TBX4 as a young PhD student, no one imagined this gene...
Jeffrey Whitsett, MD - phaware® interview 561
Cracking the Code: How Genetics Is Rewriting Neonatal Medicine
Dr. Jeffrey Whitsett reflects on five decades in neonatal care, tracing the evolu...
Episode 561 - Jeffrey Whitsett, MD
Cracking the Code: How Genetics Is Rewriting Neonatal Medicine
Dr. Jeffrey Whitsett reflects on five decades in neonatal care, tracing t...
Luke Stockdale - phaware® interview 560
From Knee Pain to Gene Discovery: One Family's Unexpected Diagnosis
What started as routine investigations into hereditary knee problems turned...
Episode 560 - Luke Stockdale
From Knee Pain to Gene Discovery: One Family's Unexpected Diagnosis
What started as routine investigations into hereditary knee problems turned...
Drs. Matina Prapa and Olivier Danhaive - phaware® interview 559
How a Global Team Is Rewriting the TBX4 Playbook
Rare diseases thrive in isolation. TBX4Life is changing that. In this episode, Drs. Pr...
Episode 559 - Drs. Matina Prapa and Olivier Danhaive
How a Global Team Is Rewriting the TBX4 Playbook
Rare diseases thrive in isolation. TBX4Life is changing that. In this episode, Drs. Pr...
Anton Morkin - phaware® interview 558
One Dad's Mission to Cure His Son's Genetic Disease
When Anton Morkin's son was diagnosed with "idiopathic" pulmonary hypertension, he refused t...
Episode 558 - Anton Morkin
One Dad's Mission to Cure His Son's Genetic Disease
When Anton Morkin's son was diagnosed with "idiopathic" pulmonary hypertension, he refused t...
Gaurav Choudhary, MD - phaware® interview 557
How an AI Stethoscope Could Transform Global Healthcare
What if diagnosing PH didn't require an echo or heart catheterization—but just a AI pow...
Episode 557 - Gaurav Choudhary, MD
How an AI Stethoscope Could Transform Global Healthcare
What if diagnosing PH didn't require an echo or heart catheterization—but just...
Lenise Whitley - phaware® interview 556
The Loneliness of Pulmonary Hypertension
After years of being dismissed, misdiagnosed, and told nothing was wrong, Lenise Whitley final...
Episode 556 - Lenise Whitley
The Loneliness of Pulmonary Hypertension
After years of being dismissed, misdiagnosed, and told nothing was wrong, Lenise Whitley final...
Nicole Fitzgerald - phaware® interview 555
One Teacher's Unexpected Battle with a Silent Killer
Nicole Fitzgerald was a full-time special ed teacher juggling work, family, and a b...
Episode 555 - Nicole Fitzgerald
One Teacher's Unexpected Battle with a Silent Killer
Nicole Fitzgerald was a full-time special ed teacher juggling work, family, and a b...
Jean Elwing, MD phaware® interview 554
Telehealth Is Ending: What That Means for PH Patients
Telehealth use surged during COVID, but what happens next? Dr. Jean Elwing discus...
Episode 554 - Jean Elwing, MD
Telehealth Is Ending: What That Means for PH Patients
Telehealth use surged during COVID, but what happens next? Dr. Jean Elwing discus...
Jasmine Wells - phaware® interview 553
You Can Grieve and Still Fight: Love, Loss, and Living with PAH
She cried for the life she lost. Then, she fought for the one she has. P...
Episode 553 - Jasmine Wells
You Can Grieve and Still Fight: Love, Loss, and Living with PAH
She cried for the life she lost. Then, she fought for the one she has. P...
Kevin Allen - phaware® interview 552
The Pulse of a Fighter: Survival, Stigma, and Shaking Up Healthcare
They told him he had months to live. He used them to rewrite the rule...
Episode 552 - Kevin Allen
The Pulse of a Fighter: Survival, Stigma, and Shaking Up Healthcare
They told him he had months to live. He used them to rewrite the rule...
Russel Hirsch, MD - phaware® interview 551
Why Families Belong at the Table: PHriends of the PPHNet
Dr. Russel Hirsch breaks down the core pillars of the PPHNet, from shared research to c...
Episode 551 - Russel Hirsch, MD
Why Families Belong at the Table: PHriends of the PPHNet
Dr. Russel Hirsch breaks down the core pillars of the PPHNet, from shared research to c...